Brighton and Hove Rocks
THE REPORT

This report provides an account of the information collected for "Brighton & Hove Rocks", an exercise in "community" involvement, to influence priorities within the new "Health Improvement Programme" (which we call a "HIMP") held at Hove Town Hall on 21st September 1999.


Back to Brighton and Hove Rocks

 

Contents
1. The process

2. A strategic framework

3. Workshops

  1. What community initiatives would make the biggest impact on your health & the health of your community?
  2. What changes in policy are needed?
  3. Findings from speakers of other languages
4. Legislative Theatre
  1. Methodology
  2. Hove Town Hall
  3. Whitehawk Valley Social Centre
  4. Response

5. To Conclude


1. The Process


1.1 The Process - Who?

In June 1999, East Sussex Brighton & Hove Health Authority approached the new Brighton & Hove Voluntary Sector Forum for assistance in identifying a process, for consulting the "community", to identify and integrate their priorities, into a new local Health Improvement Programme.

The Forum is new and has yet to create a structural way to respond to the flood of invitations to participate in local consultation exercises. It was therefore decided that a team of voluntary & statutory organisations should work together, to maximise this new & exciting opportunity.

The team was led by the Scarman Trust & included development workers from the Coalition 4 Youth, Health Authority, Sussex Community Internet Project, Working Together Project & the Voluntary Sector Forum.

Our priority was to attempt to involve those who feel excluded from involvement in planning & policy decisions.

"Local community action has a key role to play in alleviating the democratic deficit, assisting in the regeneration of poorer areas, combating youth alienation, getting people back into work, preventing the use of drugs and many other such issues. Community level activity also has a key contribution to make in promoting social inclusion, particularly in relation to ethnic minorities. The growing movement arguing for a transfer of both money and property assets into the poorest areas will support the government’s emphasis on assisting areas of multiple deprivation" Community Development Foundation

As a team we are familiar with the wealth of research and consultations that have been undertaken by statutory agencies and the resulting frustration within local neighbourhoods & communities of interest, that such exercises are costly in terms of peoples time & are widely believed to be cosmetic.

The Health Authority has agreed to provide:

Consulting the "Community"
This event was targeted at representatives from community groups & small voluntary organisations, from neighbourhoods & communities of interest, plus "users" of services provided by voluntary organisations.

We would like to thank all those who participated in Brighton & Hove Rocks for your valuable time, knowledge, experience, energies & enthusiasm.

Top


1.2 The Process ~ What?

Quotes from "Developing the HIMP"

"Over the last ten years the gap in health status between rich and poor has become wider and wider. To tackle the issue, the Government has launched a range of initiatives setting out a whole new approach to social regeneration and – especially- to tackling social exclusion."

"A Health Improvement Programme is a co-ordinated programme to improve health and to reduce health inequalities."

"There is a close relationship between social and economic factors and the health of the population. Diseases are, in part, manifestations of underlying causes. We need to understand this relationship so we can identify why some sections of the community suffer more ill health than others, work out what needs to be done and clarify those areas or issues where the NHS alone cannot bring about results.

"To make an impact, we must therefore deal with the underlying causes, as well as making NHS treatment services more accessible and effective. Joint action is always more likely to achieve change than more piecemeal approaches."

Central Government has identified four national priorities to be included in the HIMP which are:

The other priorities are to be agreed locally.

"Policies should include more consultation and listening to the outcome and acting on it!" - a participant

Top


1.3 The Process ~ How?

Holding a centralised public meeting was initially our least preferred option to undertake a consultation, however until a strategic community development framework is in place to support local "infrastructure" for grassroots communities, we decided it was of primary importance that we developed a "model", which could be used in other areas & would work on a variety of different scales.

"Brighton & Hove Rocks" was designed to be:

"People can easily get walked over by the authorities if they are lacking in confidence or don’t know their rights. A person who is perceived to be "well educated" and assertive will be treated better (with more respect) than someone who is perceived not to be. It’s a basic lack of equal opps." - a participant

Top


2. A Strategic Framework


Across Brighton & Hove a number of key programmes are being created which seek to identify and integrate community priorities. It is vital that a structure is identified at the beginning of developing a HIMP to clarify the potential roles that the "community"can play.

This checklist of key points is drawn from the Community Development Foundation a national voluntary organisation.

Purpose or vision
Does the purpose or vision include the active involvement of the community?

Area/ Population Targeting & Beneficiaries

Consultees/Representatives

Sources of community activity

Programme deliverers

Long term partners

"More information/education and a holistic, preventative approach to health management" - a participant

Top


3. The workshops


The participants were divided into 10 workshops with approximately 15 people in each. Participants were asked to brainstorm their ideas under three broad headings:

  1. The social causes of ill health
    Community initiatives that would effect change either through "self help" or activities taking place within communities
  2. Influencing change in policy
    In the afternoon participants had an opportunity to see all the ideas around community initiatives and policy change displayed on the walls. Each participant was given 10 sticky red dots and asked to place them by the ideas they felt were most important. The numbers after the community or policy suggestions represent the number of dots placed by that idea.
  3. Identifying the social causes of ill health
    The purpose of the brainstorm was to help people focus and to hear the views of others in their workshop. Within a ten minute slot the workshops produced ideas that fill five sheets of A4 paper!
This is a list of "key words" that were most used.

Abuse ~ Access ~ Lack of Advocacy ~ Attitudes of Professionals ~ Bad Planning ~ Breakdown in the Community ~ Bureaucracy ~ Carers lack of support ~ Lack of Choices in Health & in Life ~ Community Isolation ~ Not Cooking ~ Culture of Individualism & Insecurity ~ Decision Making Far Removed From Community ~ Depression ~ Destructive Relationships ~ Diet ~ Discrimination ~ Domestic Violence ~ Drug & Alcohol Abuse ~ Education ~ Emotional and Physical Abuse ~ Environmental factors ~ Equal Opportunities need to be taken on board by everyone ~ Family Breakdown ~ Fear of Crime ~ Food ~ Government Policies ~ Homelessness ~ Homophobia ~ Housing ~ Information on Access to Services ~ Insecurity ~ Isolation ~ Lack of Access to ~ Affordable and Available Childcare ~ Appropriate Housing ~ Basic Counselling ~ Doctors/Medicine ~ Facilities ~ Fresh foods at affordable prices ~ Lack of Communication Between ‘Powers That Be’, Government and ‘Users’ ~ Lack of Communication Between Departments ~ Lack Of Consultation ~ Lack of Empowerment ~ Lack of Meeting Places ~ Lack of Power ~ Lack of Programmes About Cultural Diversity ~ Lack of Social Support ~ Lack of Support - Resources – Networks – Facilities ~ Lack of Training in Staff ~ Long Working Hours Stress & Insecurity ~ Mental Health ~ Money -~ Monopoly of Shops by Supermarkets Need to Work Together Seamless Services ~ Not Consulting Causes, Isolation, Fear ~ People Valued in Money Terms Not For Selves ~ Policy Addresses Needs of Majority So Not Fully Inclusive ~ Policy Made By People In Offices/Town Halls ~ Pollution ~ Poor Parenting - Child Abuse and Neglect ~ Poverty ~ Powerlessness ~ Prejudice ~ Pressure of Advertising ~ Racism ~ Social Exclusion on Basis of Gender, Race, Sexuality, Class, Age, Disability ~ Social structures breakdown ~ Stress ~ Support Network Breakdown ~ Unemployment ~ Violence ~ Waiting for Treatment Too Long ~

An analysis of the key words presents a diverse picture. In terms of the HIMP it will be essential to tackle these issues effectively by agencies working together across all sectors.

It is important to consider individuals and communities who experience one or more factors, causing multiple forms of deprivation.

Top


3.1 What community initiatives would make the biggest impact on your health & the health of your community?

Comment No.
Community development projects to combat social exclusion encourage ownership and responsibility, reduce isolation and support people, to provide free/cheap resources and information 23
Small local centres with access to services and information e.g. information point in Doctors surgery 16
More Community Transport Facilities 13
More localised community facilities - eg. leisure, theatre, etc, activities opportunities for social interaction - wheelchair accessible - everywhere!! 13
Advocacy and Befriending from within the community 10
Benefits which enable people to live decently within society 10
Friendship/Buddy schemes - supported by the council, especially for disabled young people to help them access mainstream activities 10
Healthy Living Centres - need to be accessible (in local vicinities), holistic with large range of services, in different communities for those communities and crossing over different health issues and communities 10
Residential place (a house) able to accommodate women, with or without children, escaping domestic violence, but who also have alcohol/drug addition(s) - respect, integrity, support, safety, etc 10
Zero Tolerance Campaign around all forms of discrimination - being more tolerant, less judgmental - eg. young single parents, age, etc 10
Celebratory events Community Festivals - increase participation 9
Communities already providing advocacy, but needs more co-ordination and resources (eg. paid worker) plus voluntary resources already there 9
Detox Centre which is residential well serviced 9
Parenting skills in schools 9
Places to meet - Access - with childcare 9
Food co-ops : nutritional foods at affordable prices 8
Foster sense of citizenship from an early age 8
Training communities in community development with key members, raising self esteem, confidence - community-led training, trainers drawn from local community - peer-led training 9
"LETS" scheme - more localised exchange of skills to support needs/wants/desires of others - ways in which people can easily do this 7
Credit Unions / Community Banking 6
Health Outreach Workers 6
Housing support services to help people maintain tenancies and good maintenance services Respiratory disease - damp housing - reduce costs for heating homes or give more money for this 6
More services for older teenagers/young adults 6
More Youth Clubs / After School Clubs 6
Building on existing good practice and recognising importance of community leaders through mentoring, befriending etc. Voluntary schemes with more funding 5
Community homes and flats for those who need it - older people, disabled, mental health, young people, etc 5
Community safety initiatives - reducing abuse (physical/verbal) - eg. educational approaches to change attitudes in schools, and communities and organisations - gay and lesbian community – race 5
Early intervention and preventative measures need to be incorporated into all community initiatives 5
Outreach which goes into people’s homes - using alternative therapies as a way in to addressing other issues 5
Overnight provision for homeless people 5
People within community with disabilities "visiting" others. Peer support, mutual, flexible 5
Broad health education for young people / parents - eg. food, budgeting, childcare 4
Food Projects (Growing) – Allotments 4
Holistic Approach incl. western medical, complementary and other approaches 4
Learning relaxation and meditation in schools : how to be healthy : emphasis on preventative medicine 4
Ask people how an organisation is run (not just Government/State provision bad at this but also voluntary organisations)- Users Determine 3
Communities to organise events such as these to say what they want - need help from community development workers to organise 3
Community clinics/centres where people can seek help but not stigmatising like family centres - combining community care, health centre and social services 3
Cookery lessons - simple recipes - near people’s homes - eg. Get Cooking 3
Free/cheap gyms and health studios 3
Full time and paid community development workers 3
Health professionals need training in how to work with and provide relevant services to different client groups 3
Healthy Living Centres led by communities sort of idea. Opportunities to talk and feed back which would be local and formal 3
Improved and affordable (free) transport : geographical boundaries should be broken down 3
Mental Health - lack of services for young people - preventative services 3
Parenting Skills and understanding relationships - supported by Social Services (children and families) - Also At School 3
Sense of community, responsibility, respect, more neighbourhood orientated 3

All 2 comments

Agencies in town centre eg. Carers Centre - can’t get to / no parking - holding meetings at awkward times; Baby sitting service; Community Gardens; Develop Support Networks Bring issues / services to communities; Drawing causes of ill health into Agenda 21 (Environmental Education); Education and Awareness in communities / led by communities eg. raising awareness of sexual abuse. Also awareness for professionals meeting real groups of people; Greater access to complementary therapies; Increase self-help programmes (need money) - eg. relaxation / pain management for treatment and prevention; Peer Education and owning how the education is led - taking on issues of health into what they’re doing already - making it more recognised; Prevent isolation - Being Heard; Skill exchange in the community; Substance Misuse - lack of services Fear within communities; Supporting and valuing what’s already going on - Use skills and knowledge of people in the community - offering resources and training - meeting, minutes, business skills; Voluntary and community groups could be more accessible, visible - advertise - more publicity

All 1 comment

Ability for people to be able to shout aloud and voice their needs - channel for doing so - people with power to listen and fund; Attitudes Change; Bulk buying of food; Child to Child Education which is taken back to families; 'Circle of Friends’ - Trustees which empower and support individuals; Commitment to changing physical environment - with support from local government; Communal use of communal space - eg. allotments; Communities need help to come together to be heard, identify their own power; Community magazines funded and facilitated and information guide from Health Service etc - also sensitive to other needs eg. tape form, large print; Develop and encourage more Councillors to be community based - ie. train local people to support and provide a good ear; Door to door delivery of fresh foods - supermarket deliveries; Emphasis on family roles, relationships and responsibilities - could increase personal & social education into wider community; Form lobbying groups - ie. transport issues; Free counselling available (befriending); Helplines; Home visiting and information service; Homes with support after ‘illness’; Increase liaison with schools and elderly; Lack of community buildings; Libraries to provide literacy, computer, Internet; Make more use of community associations - community based facilities; Money and Finance. Transparent figures on health; More attention should be paid to isolated individuals - eg. transient, refugees; More community safety initiatives and awareness; More education re. "delicate issues" eg. sexual abuse - people isolated with their experience; More Outreach for Mental Health Issues; More residential places for everybody that need it; More school education re. health - eg. drugs, sex, healthy eating, - community/peer involvement in this education; More Start Up money needed; Needle exchange in Hove; Newsletters; Older People can be involved too; Perhaps more localised pressure groups - with power; Professionals mustn’t give impression that people are wasting time when they come in on (preventative issues) - ie. someone comes in because they ‘think’ they have symptoms; Rehabilitation homes; Revamping and modernising ‘neighbourhood watch’ scheme engendering feeling of everybody having a stake in society - encouraging responsibility - group of people you can trust who you know are looking out for you and vice versa – Trust; Supporting local businesses - this has beneficial impact on community; Use Internet in cyber cafes and local projects; Voluntary organisations can be more imaginative - broader ranging - not be so blinkered and narrow with ‘client group’

3.2 What changes in policy are needed?

Comment No.
Recognition of the value of complementary therapies. Alternative complementary medicine accessible through NHS - not private 65
Ongoing involvement for us in the policy making with reasonable timeframe, listen and respond to local voices/needs from all sections. Community demanding accountability from the powers that be 26
Revolutionise concept of health, from illness, visiting the doctor to holistic promotion of positive health, mind, body connection. Treating the whole person – person centred. NHS needs to shift focus from disease to prevention - this is structural 25
Build up trust in the community - one way is continuity of workers and funding, More long term funding for projects and not always funding for new projects otherwise what happens to successful projects after 3 years? 23
Training of People - front-line services, receptionists, policy makers, GP’s, social workers, interpersonal & cultural skills, person-centred approach to eradicate preconceptions, travellers, young people 22
More needs let support to families with disability - family focus 17
Better understanding of Dyslexia/ADHD - 1 in 30 children - Improved Services and Change of Attitudes Needed 10
GP referrals to wide range of ‘generic’ services - eg. gyms, alternative therapies, holistic/medical. Do this in other places (Chichester) 10
Low priority given to maintenance services - eg. speech, OT, physio, dietician 9
Equal Opportunities with teeth!! 8
Higher priority given to counselling - support around relationships and mental health (low cost) and integrated into other services 8
Women’s needs of different ethnic minority groups, Some women working long hours 8
CAMHS - need to start delivering services people want - lack of partnership working - do not consult - need team working - not in isolation 7
Hospitals provision of culturally appropriate meals 7
Provide practical support to communities - buildings, skills, other resources 7
User participation / forums with residents / community of interest / including for Young People 7
Advocacy schemes supported by policy to enable ethnic minority people to access services 6
Concessions for carers or free (eg. Eastbourne is 60p for disabled swim and carer free) - free parking 6
Learning Disabilities - more services needed after leaving school - gap - appropriate help needed 6
B&H underwrite mortgages to allow families (with a disabled child or relative) to move into more social housing (and not be trapped in inappropriate accommodation) especially built for disabled people 5
Better access to health care for socially excluded 5
Health Minister should have to live on streets for a month 5
Increase funding for self help 5
Leisure and fitness made more accessible by not contracting out these services to profit makers - or various concessions to disadvantaged groups 5
Primary Care Groups formally asked to look at combination of complementary therapies - especially areas doctors can’t deal with e.g. anxiety/depression/asthma/eczema/self-injury 5
Personal Social Education - curriculum to include emotional health issues - bringing in voluntary sectors 5
Co-operation between statutory bodies to prevent the criminalisation of certain kinds of behaviour in the community 4
Legislate for recycling - Government responsibility - should be free service 4
Access to contraception in schools mandatory as part of curriculum - presented correctly 3
Awareness of mental health, education - training issue not just for users 3
Build on local GP surgeries with community development workers - mini healthy living centre - more holistic service 3
Co-ordinating funding applications and needs analysis Help for communities to get funding More pressure on business to fund and review of match funding requirements 3
For Benefits Agency to value volunteer work - to allow people to carry on with valuable voluntary work and not have to go to Job Club etc 3
Getting Fit - cheap non-exclusive accessible leisure centres with crèche facilities 3
Holistic Health Care - assessment for people as individuals 3
Integrating work with communities of interest into geographical communities 3
Look at Administration of Anti-Depressants to pregnant women - related to birth defects 3
Look at the culture of Prescribing Drugs … … Do People Need Drugs!! - maybe time, listening, attention is also necessary (are all prescribed drugs used) 3
More accessible shopping areas re. people with disabilities, elderly, parents with children 3
More Advocates 3
More Parenting Skills 3
Provide Helplines 3
Refurbishing derelict properties Government Council Speed up and expand existing service 3
Schools open up facilities to the wider community - there could be a community liaison worker 3
Transport - cheaper and more accessible 3
Addiction is a health issue - not a moral or criminal issue  

  All 2 comments

Addiction is a health issue - not a moral or criminal issue; Address long term users of anti-depressants. Commission research; Ban heavy doors and focus on access issues; Better health information / education in schools making good health living attractive; Big Govt. projects too complicated. Admin. costs high - money not getting to real people; Change culture to/of valuing experience of children, respect for children; Contradiction between B&H Council car policy and lack of investment on buses/public transport - especially costs from outlying areas; Do something re. Waiting Lists; Employing people in the local community to encourage local initiatives; End to the something for nothing culture - there should be more accountability; Funding of GPs excludes sections of society like travellers, should not depend on pharmaceutical perks; Get issues of health taught in schools; Government funding for local people’s training on health issues; Health/Education working more closely together - social services, prison services, doctors; Level fuel tariffs - reduce meter levels; Local Authority owned shops to go to community use; Making health and healthy lifestyle more attractive; Mental Health services are too polarised; More employment opportunities - apprenticeships - permanent contracts; People with disabilities sitting on Tribunals re. incapacity benefit; Providing free facilities and resources - ie. leisure centres, photocopying, sending out newsletter; Punitive, hostile environment of Tribunals causes ill health - change to friendly, positive; Schools should be open to outside agencies and actively welcomed - community schools

All 1 comment

A culture of listening, not being prejudiced - ie. using Portslade Community College model with professionals; Abolish VAT on hot take away food - not luxury for families in temp. accomm.; Acknowledge scale of child abuse and long term consequences - eg. Homelessness 1; Adequate social housing; Awareness raising of child abuse - training for teachers, playgroup workers; Better education on nutrition; Brighton Rocks in March 2000; Capping private rents - rent sub etc; Cheaper public transport - increase accessibility; Community information workers - making links across neighbourhood; Co-ordinated voluntary, statutory and community [ill] health prevention strategy; Co-ordination of what exists already - an overview; Develop community health and broaden their role to include advice and information include Drop In Centres; Different organisations to come together to implement what people want; Ds(Ls?) to single room rent restrictions for under 25s – abolish; Education and training in substance misuse - GPs, teachers, social workers, nurses from 2000 on; Empower local people; Enabling GPs to give choices - ie. alternative medicine; Free healthy hot school dinners for all children; GPs need to be retrained to do stints in hospitals and out in community with vulnerable / community group; GPs should become all-round services - one stop shops - eg. Chiropractors; Greater recognition of community associations; Improved housing stock, well insulated, environmentally sound - don’t ghetto-ise communities; Increase energy efficiency of all housing; Increase public transport for people to get to work - eg. hospitals / health authority take the lead with employee transport to work schemes eg. Bikes, mini-buses; Increase training for workers in all sectors on issues to identify symptoms of neglect and abuse - respond appropriately - eg. training to school teachers ref. Abuse, violence etc; Lottery funding designated to community care by right not by application; Make grant forms easy, simple and short; Meet regularly from grass roots basis locally; More clubs for different age groups; More doctors and specialists particularly around difficult substance abuse issues; More information on food packaging - ie. contents, origins; More joined-up thinking - neighbourhood management?; More services for men - particularly health and prevention; NHS learning from models of good practice in other areas of the service; Social Services - remove myth that they take kids away fist - stop heavy handed approach - increase service - more preventative action - drop in centres; Policy makers empowering local people rather than making the decision and undermining the community - a change in mindset; Preventative NOT Reactive!! - reallocation of resources; Schools curriculum - should include more on healthy lifestyles - drugs - theatre - cooking skills and nutrition and food and technology; Shortage of youth workers; Supported Accommodation; Teachers need more training in how to support the wider context - eg. awareness of issues; To Prioritise Government Spending on Health and Education - This Would Transform Society; Transport - claim fares for all health visitors and those on low income - more community transport - more concessions on buses, OAPs and children free; Transport - subsidised buses and trains; Use of Jargon / Plain Language; Using public places to reach outreach communities, rather than expect people to come to organisations/services; Wider diversity of public transport - accessible and different routes and restructure nature of pricing

Top


3.3 The following findings are from the workshop held for speakers of other languages.

Comment No.
Appoint a full-time Chinese Community Development Worker (bilingual) to begin the processes outlined in these recommendations 49
Funding for Chinese Community Centre 28
Project to establish centre for provision of support to minority ethnic communities: filling in forms, benefits, schools, housing, interpreting and translation - Information on Health Issues in Minority Ethnic Languages. Support Groups, etc 10
Government should give more money to interpreting projects and expand the service 8
Advocacy Service based in the Japanese Community around Mothers’ Rights (inequality mothers’/fathers’ rights after separation) 6
Chinese Community web page - 80% families could access a database for community services 6
Continuity of Interpreters - especially on sensitive issues eg. domestic violence 6
Advocacy and Counselling Service for Bangladeshi Women 5
Interpreters should be provided with pagers so they can be contacted 24 hours 4
Link Worker between Health and Chinese Community Centre 4
Medical leaflets should be translated into languages spoken by the local community 4
Education Policy Should Instil Respect For Other Cultures 4
Provision for Chinese elderly community 4
All letters sent to ethnic minority community members should be translated into their language 3
Cultural Awareness Training for Doctors and Medics - ie. Chinese medicine 3
Independent Watch Dog for Public Services such as Education / Social Services for Minority Ethnic Communities with different needs and values 3
Support for minority ethnic women in case of domestic violence 3

All 2 comments

Financial Support for Minority Ethnic Communities to Access Appropriate School for Children - State Schools Lack of Discipline, Racism, etc; Health Education through Audio Visual Activities and Aids; Health Education with Translation; Home Health Visitors - especially for elderly – bilingual; Promote awareness of needs of Chinese issues proactively - elderly, partic youth group, women’s needs, language, Mother tongue teaching Represent Chinese Community to Government; Public services should recognise that interpreting needs more time for consultation; Social Events with Health Message - eg. messages through drama and non-verbal plays

All 1 comment

Government health policy that leaves people with drug and/or mental health problems on the street threatens safety and security of Minority Ethnic Women; Bilingual Childcare and Teachers; Government should place more emphasis on minority ethnic needs - eg. only 6 languages recognised as ethnic minority community; Japanese Women’s Project needs safe place to meet, office space, storage for Japanese organic food bulk buy scheme; Action to Support Ethnic Minorities be taken; Translation/interpreting services for Law Courts, Solicitors, etc.

Top


4. Legislative Theatre


Within the community involvement for the HIMP, we were presented with a unique opportunity to conduct an experiment in consultation through ‘legislative theatre’. This is an innovative, accessible method of exploring an issue in an enjoyable and challenging way.

This part of the report documents the methodology, the suggestions for change prompted by the play ‘Staying Alive’ and people’s responses and experience of this experiment in legislative theatre in this context.

Top


4.1 Methodology

‘Have the courage to be happy.’

- Augusto Boal’s election slogan

Augusto Boal was an elected Councillor for Rio de Janeiro in Brazil. He invented legislative theatre, through his work with people at the grassroots from various communities of interest and geographic communities all over Rio. He enabled them to devise plays about issues that concerned them. Each community showed the play they created to their own community, as well as touring it to other communities, to exchange perspectives and different experiences. A team of people then collated the results of these and the information became drafted laws that went to Rio’s legislative chamber. Thirteen new laws were passed during Boal’s term in office using this way of working.

In Brighton and Hove the situation was rather different and the methodology required some radical re-thinking and compromises. There was only 3 months available over the summer between the Health Authority contacting us and the Government’s deadline for the Health Improvement Programme to be written. Ideally we would have liked to work with a range of geographic communities and communities of interest, enabling each to create their own piece of theatre to explore issues of relevance to them. However, reality meant a compromise had to be made and we chose to create one play with a group of people from various grassroots communities in Brighton and Hove. It is extremely important that the play or ‘model’ accurately reflects the reality of the group’s experiences as the issues it raises are used as the stimulus for discussion with the wider community. We chose to focus on one character experiencing social exclusion, in the hope that this would resonate with various communities across the city.

The other difference in methodology was through the audience interaction with the ‘model’. In Boal’s legislative theatre the play is shown to the audience once and then the audience are asked to stop the action and replace the central character to try other ways of behaving to solve the problem. The emphasis is firstly on the individual’s responsibility and their possible behavioural choices, secondly on what could be changed in society through legislation to improve that person’s life.

The creation of a HIMP involves a shift away from a culture of emphasis on individual’s lifestyles, to one where we as a society are being encouraged to look at how society impacts on our health in it’s holistic sense. Therefore it is more empowering in this context to ask people to think about community initiatives or policy change which would have a positive impact on the central character. We chose to alter the methodology for this event, asking people, ‘If you had the power, what would you change?’ People were asked to shout ‘Stop!’ and shout out their ideas before being given 30 seconds to write them down. Their inspirational ideas are recorded here.

Top


4.2 Hove Town Hall – 21st September 1999

The legislative theatre at Hove Town Hall involved over 150 people from various community groups and voluntary organisations from across Brighton and Hove. What follows is a summary of each scene in the play, followed by interventions from the audience of what would improve Julie’s health and stop her from reaching crisis point at the end of the play. The suggestions are grouped together in themes.

Scene1 – Julie’s House
We see Julie preparing for her presentation at evening class, when her childcare for that evening falls through. While she is trying to sort out some alternative, she sends her daughter to the chip shop, as her brother didn’t take her to ASDA yesterday. She tries asking her daughter to baby-sit, but this ends with the daughter storming out after a row. Her brother turns up ready to give Julie a lift to the evening class to find her completely stressed. He insists she should still go and says he and his wife will look after the kids. His wife comes in and refuses to help. Julie asks them all to leave, completely overwhelmed by everything. Then the power goes; the credit on the key meter has run out – she’ll have to put it on emergency.

Support for the family

Access to healthy food

Childcare

Smoking

Electricity Payment Methods

Scene 2 – The Park
Julie’s in the park with her son who’s off school with asthma. Her friend ‘Shell’ comes along and they discuss the state of the park. Her son comes running in with a beer can he’s found from the night before. They argue about where the kids are supposed to go at night. Julie wishes she could afford to get her son down to the new basketball pitch on the seafront when he comes running in having fallen over in dog’s mess!

Youth Work

Transport

Public Spaces

Local Employment Opportunities

Scene 3 – The Exercise Class
Julie arrives late to an exercise class. The instructor doesn’t notice her late arrival or her problems with some of the exercises. At the end of the class Julie asks about the pain she’s experienced in her legs and the instructor fobs her off saying she should exercise more regularly. She leaves with 2 mates lighting a cigarette on their way to the pub.

Qualified Instructors

Opportunities for Exercise

Lifestyle Issues

Scene 4 – The Post Office
Julie is in the post office queuing for her new benefit book. She bumps into Shell again and they talk about how Sam’s asthma is worse because the house is so damp and she can’t afford to dry her washing at the launderette, so she hangs it over the radiators. Then she bumps into an elderly neighbour who is in a lot of pain with her hip, she feels guilty and promises to go round and do her housework. When she gets to the counter her book has not arrived and she is told to go to the DSS despite the fact that she has no way of getting there and 2 kids in tow. She leaves on the verge of tears, frustrated and humiliated.

Post Office

Housing Issues

Benefits

Scene 5 – The Doctor’s
Julie arrives at the doctor’s surgery with her son. The receptionist is rude and unhelpful, asking people to describe their symptoms in earshot of the rest of the waiting room. The doctor sorts out her son’s asthma and then reluctantly listens to Julie’s own health concerns. She comes to the conclusion that anti-depressants would be the best thing for Julie and prescribes her a 3-month course.

At the end of the play we see Julie alone again in her house. She reads aloud the list of side effects, which sound so similar to her current problems, she resigns herself to taking the first pill and starts crying.

Doctor’s Surgery

The GP

Services/Training to Make Surgeries more Accessible


4.3 Whitehawk Valley Social Centre – 13/9/99

The trial run at the Valley Social Centre in Whitehawk was organised in partnership with the New Deal for Communities Team to assist in their planning process for the Health, Families and Children Group.

The audience was made up of around 30 residents from Whitehawk and Moulsecoomb who had been invited by community workers and other residents who’d come into the bar and got involved as the evening progressed. There were also people who were acting as facilitators at Brighton and Hove Rocks who were there to see how it would work. The suggestions from this group of people are listed here.

Scene 1 – Julie’s House
Basics bank of food run by local people for local people; Local shops selling cheap healthy food; Free transport to supermarkets; Transport to and from the college; Delivery service from supermarket; Provide crèche at evening classes; Daytime classes with crèche; Community crèche / nursery; Provide vouchers to exchange for childcare locally; Local baby sitting circle with licensed helpers – backed up by training; Bartering or LETS scheme locally to help with childcare; Distance learning opportunities; Community education locally looking at assertiveness, health, parenting, food, smoking ; Parenting classes / Parent support offered locally; Anger management training; Negotiating skills training; Cooking skills classes for food on low income; Drop in centre – increase social opportunities; Cigarettes should be sold to over 18’s only; Proof of age scheme; Credit Union; Help / training / support with budgeting; Campaign to stop key meters being a more expensive way of paying for electricity than direct debit; Take utilities payments direct from benefits; Billing on a sliding scale according to ability to pay, end reduction for direct debit

Scene 3 – Exercise Class: (Scene 2 had not been developed when we performed at Whitehawk)
Assertiveness skills training; Community exercise e.g. a walking group to also give more social contact ; Community groups get equipment and training; Crèche available at exercise class; Don’t reinvent the wheel on smoking – find out what has worked elsewhere; Free /Reduced cost exercise available locally ; Free directory of where activities are available; Fully trained exercise instructors – who regulates this?; New people attending exercise classes should be interviewed; Local forums on health and welfare use cancer patients to make anti-smoking message real; Non-smoking areas in community buildings; Places to socialise other than pub e.g. community cafe; Training for local people on how to help each other stop smoking

Scene 4 – Post Office
Free play areas at Post office/ DSS/ Doctor’s surgery; Clear ways to report things to authorities with time scales for action; Job swap! Senior benefits officer/ Health Authority Officer/ Doctor – should live on benefits for a week – person on benefits chance to understand decision making structures that affect them; Lobby for less red tape around benefits; Free phone facility from PO to DSS; One stop benefits shop with outreach; Benefits agency on estate; Community laundry facility; PO Counter staff should be able to solve situation of no benefit book; PR training for front line staff

Scene 5 – The Doctor’s
Better links between doctors and other social services; Free counselling; Receptionists trained in TLC; Receptionists trained in customer care; Receptionists trained in public relations; Receptionists should be recruited from the local community so they have an understanding of the issues for that community; Mobile doctor – more TLC; Standards of behaviour for all doctors; Doctors trained in wider health issues; Employ more doctors and make better use of nurses e.g. on the phone so not describing symptoms to receptionist to make decision; Doctors to fully explain about medication; Doctors to be trained in social skills; Doctors to meet regularly with community

Top


4.4 Responses to the legislative theatre experiment

The overall response to this method of involving people in shaping policy was that it was vibrant, engaging, different, energising and accessible. People who performed in ‘Staying Alive’ have subsequently reported being stopped in the street, at the school gates and being spoken to on the bus by people who saw one of the performances – people wanted to continue talking about the issues!

"It was a great confidence boost for me. When we performed at Whitehawk I felt proud, like I was home and I belonged somewhere. It was really good to be doing something you knew was going to make a difference." Karen Taylor, Performer

In terms of improvements that could be made, the general feeling was that this technique would be more effective if used with various geographic and communities of interest, each creating their own play about their own issues. The performance in Whitehawk produced a more emotional and instinctive reaction, which led to powerful, imaginative suggestions based on people identifying with the reality they watched.

"It was FAB! There needs to be more of it." Whitehawk resident

 

"I’ve been there. It was brilliant the way it was so believable and really interesting to watch at the same time." Moulsecoomb resident

There was feedback from people from communities of interest who felt that their experiences had not been represented in the play. It was felt that if the HIMP was really to involve people from a number of communities in Brighton and Hove, the process should be repeated with plays produced by a variety of communities.

" I thought it was a brilliant way of engaging people, very real, visual and easy to understand. I loved the way people were doing it instead of writing or reading about it. We need to do more of this, the time and labour involved reaped good stuff." Ododo Dafe, Research and Information Manager, Brighton and Hove Council

Top


5. To conclude


The Health Improvement Programme should reflect the views that social causes of ill health, for individuals & communities include:

Throughout the day a number of themes emerged. It is important that the HIMP reflects "community" perspectives & beliefs: